FXSmom

What do you think about what Mr. Harper has to say?

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Posted in News Flash Tagged: autism, congressman harper, fragile x syndrome, gregg harper, health care reform, universal health care

The last thing I want to share today is this PSA.  I hope those of you who aren’t immersed in fragile x syndrome learned something today.  My dream is that if someone is affected by fragile x syndrome, the response won’t need to be, “Fragile What?”


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Dr. Silverton’s son, Aidan, gets to make an appearance on the news clip.  Adorable child.   I posted a news story a couple of years ago on this ongoing, and unique way, to raise money and awareness for fxs at Botox for FXS?! .

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Very good video

This has already been accomplished and he rocked it!!

One of my all time favorite stories involving a fragile x youth is the one of Jake Porter.  If you are clueless as to what I'm talking about go to this article: Unique Touchdown touches Hearts. I was looking on youtube for any new videos related to fragile x or autism and actually found a video of Jake's touchdown.  It was awesome to watch the events transpire even if it happened 7 years ago!  And there is supposed to be a made for tv movie about it called Jake's Run that should come to USA sometime this year.

Here is the video:

This pulitzer prize winning video features developmentally disabled adults...one with fragile x syndrome.  Check it out!!