Lauren Update
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Oct 30, 2008
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Yes I know, it's been awhile. She is doing pretty well. Sitting up, grabbing at things, playing with blocks, putting the blocks in and out of her toy cookie jar, etc... We now have PT and OT coming to the house to work with her every week. We still go to speech on Wednesday mornings to work with her on eating etc... That is the set stuff for the week.
Lauren went this past week to visit the lung doctor and has now been put on a breathing treatment twice a day. I guess she has developed some airway disease that 95% of kids with trachs have. Always fun. The medicines costs us about $600 a month for that but lucky us we have insurance and she has secondary medicaid so we have yet to pay a dime. Kinda nice because that price is after our prescription plan and we could not afford it on her own. Lauren also is on a very specific formula that is kept behind the counter at the pharmacy. It runs $750 a month (1 can lasts about 2 days at $50 a can) insurance does not pay for it but medicaid does and we have it shipped to our house, when the "g"tube comes out we will have to foot the bill for that but hopefully it will come out at the same time she is fully on solid food by mouth in which case no formula. I thank God for insurance even though ours is quite outrageous and we pay it out of pocket but it's still less then all her medical bills, monthly bills, OT, PT, Speech, medicines, medical supplies and formula, and whatever else babies need. (Note to others the UPS guy knows us by name since we get multiple deliveries of supplies every week).
Well lets see... Lauren went for her the cleft palate board appointment this last week. It took about 5 hours to meet every specialist and every doctor but we made it through. I guess you could say we where a bit disappointed (not the doctor's fault), this meeting has been on the books for 7 months and we had been hoping for some closure to the entire thing and it did not happen. For the plastics guy (who we meet with) to do his part o.
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